July 2022 Conference

Any questions, call or text Elizabeth Reynolds at 727-612-4606.

Hotel Information

The Champ Foundation is covering hotels rooms for presenters and affected families. The hotel is the Kimpton Palomar Hotel in Philadelphia. The address of the hotel is 117 S 17th St, Philadelphia, PA 19103

If you have not already spoken with Elizabeth Reynolds about hotel reservations, please contact [email protected]. We still have a few rooms available.

If you have spoken with Elizabeth Reynolds about a room, expect an email confirmation from the travel agent over the next few days.

Friday July 8, 3pm – 7pm

Family Event at the Philadelphia Zoo

Zoo Map

Download a map of the zoo

Zoo Address
3400 W Girard Ave, Philadelphia, PA 19104
We will have parking passes for you. Parking is available at the Zoo Garage at 35th & Girard Ave, Tiger Parking Lot, and Zoological Drive.

Zoo Schedule

3 – 5 pm
Registration, Pick up tickets and parking pass at the North Gate. There will be a registration table.
3 – 4 pm
Explore and see animals, Philadelphia Zoo
4 pm
Drinks and socializing, Peacock Pavilion
4:30 pm
Group photo, Peacock Pavilion
4:35 pm
Welcome, Peacock Pavilion
5:00 pm
Dinner, Peacock Pavilion
7:00 pm

Saturday July 9, 8am – 4pm

Scientific and Research Event at Children's Hospital of Philadelphia

Breakfast and lunch provided; volunteer Child Life Specialist will be available to play games, do crafts and hang out with children and their siblings!

Parking information

Visit Chop Parking for information.

Attending In-Person

Children's Hospital of Philadelphia Abramson Research Center
Conference Room 01-123ABC 3615 Civic Center Blvd,
Philadelphia, PA 19104-4399

Enter on Civic Center Blvd. Walk straight past the first security and turn right before the main lobby. Conference Room 01-123ABC will be on your right.

Attending Virtually

Join the Virtual Teams Meeting
Learn how to join the meeting without a Microsoft Teams account

8 am
Breakfast and research labs (for interested families and children)
9 am
Welcome by Jeff & Elizabeth Reynolds, founders of The Champ Foundation
9:10 am
Patient story
9:20 am
Champ Foundation Registry update by Elizabeth Reynolds, co-principal investigator of the Champ Foundation Registry
9:35 am
Natural History Study update
9:50 am
Morning break and research labs (for interested families and children)
10:20 am
Patient story
10:30 am
Biospecimen bank update by Suneet Agarwal, MD, PhD, Boston Children's Hospital
10:45 am
MRI image bank update by Cesar Alves, MD, Children's Hospital of Philadelphia
11 am
Minovia Therapeutics trial update by Alan Jacobs, MD, PhD
11:15 am
Clinical panel Q&A
11:45 am
Lunch and research labs (for interested families and children)
12:45 pm
University College London project update by Ian J. Holt, PhD, and Antonella Spinazzola, MD
1:10 pm
Boston Children's Hospital research update by Suneet Agarwal, MD, PhD and Zach Belgacem
1:35 pm
Maastricht University research update by Bert Smeets, PhD and René de Coo, MD, PhD
2:00 pm
2:20 pm
University of Cambridge research update by Michal Minczuk, PhD, and Pedro Silva-Pinheiro, PhD
2:45 pm
Pittsburgh project update by Bruce Armitage, PhD, Carnegie Mellon University
3:10 pm
Children's Hospital of Philadelphia research update by Suraiya Haroon, PhD
3:35 pm
Closing remarks by Jeff Reynolds