July 2022 Conference
Any questions, call or text Elizabeth Reynolds at 727-612-4606.
Hotel Information
The Champ Foundation is covering hotels rooms for presenters and affected families. The hotel is the Kimpton Palomar Hotel in Philadelphia. The address of the hotel is 117 S 17th St, Philadelphia, PA 19103
If you have not already spoken with Elizabeth Reynolds about hotel reservations, please contact [email protected]. We still have a few rooms available.
If you have spoken with Elizabeth Reynolds about a room, expect an email confirmation from the travel agent over the next few days.
Friday July 8, 3pm – 7pm
Family Event at the Philadelphia Zoo
Zoo Map
- Zoo Address
- 3400 W Girard Ave, Philadelphia, PA 19104
- Parking
- We will have parking passes for you. Parking is available at the Zoo Garage at 35th & Girard Ave, Tiger Parking Lot, and Zoological Drive.
Zoo Schedule
- 3 – 5 pm
- Registration, Pick up tickets and parking pass at the North Gate. There will be a registration table.
- 3 – 4 pm
- Explore and see animals, Philadelphia Zoo
- 4 pm
- Drinks and socializing, Peacock Pavilion
- 4:30 pm
- Group photo, Peacock Pavilion
- 4:35 pm
- Welcome, Peacock Pavilion
- 5:00 pm
- Dinner, Peacock Pavilion
- 7:00 pm
- Close
Saturday July 9, 8am – 4pm
Scientific and Research Event at Children's Hospital of Philadelphia
Breakfast and lunch provided; volunteer Child Life Specialist will be available to play games, do crafts and hang out with children and their siblings!
Parking information
Visit Chop Parking for information.
Attending In-Person
Children's Hospital of Philadelphia
Abramson Research Center
Conference Room 01-123ABC
3615 Civic Center Blvd,
Philadelphia, PA 19104-4399
Enter on Civic Center Blvd. Walk straight past the first security and turn right before the main lobby. Conference Room 01-123ABC will be on your right.
Attending Virtually
Join the Virtual Teams Meeting
Learn how to
join the meeting without a Microsoft Teams account
- 8 am
- Breakfast and research labs (for interested families and children)
- 9 am
- Welcome by Jeff & Elizabeth Reynolds, founders of The Champ Foundation
- 9:10 am
- Patient story
- 9:20 am
- Champ Foundation Registry update by Elizabeth Reynolds, co-principal investigator of the Champ Foundation Registry
- 9:35 am
- Natural History Study update
- 9:50 am
- Morning break and research labs (for interested families and children)
- 10:20 am
- Patient story
- 10:30 am
- Biospecimen bank update by Suneet Agarwal, MD, PhD, Boston Children's Hospital
- 10:45 am
- MRI image bank update by Cesar Alves, MD, Children's Hospital of Philadelphia
- 11 am
- Minovia Therapeutics trial update by Alan Jacobs, MD, PhD
- 11:15 am
- Clinical panel Q&A
- 11:45 am
- Lunch and research labs (for interested families and children)
- 12:45 pm
- University College London project update by Ian J. Holt, PhD, and Antonella Spinazzola, MD
- 1:10 pm
- Boston Children's Hospital research update by Suneet Agarwal, MD, PhD and Zach Belgacem
- 1:35 pm
- Maastricht University research update by Bert Smeets, PhD and René de Coo, MD, PhD
- 2:00 pm
- Break
- 2:20 pm
- University of Cambridge research update by Michal Minczuk, PhD, and Pedro Silva-Pinheiro, PhD
- 2:45 pm
- Pittsburgh project update by Bruce Armitage, PhD, Carnegie Mellon University
- 3:10 pm
- Children's Hospital of Philadelphia research update by Suraiya Haroon, PhD
- 3:35 pm
- Closing remarks by Jeff Reynolds